Monday, May 4, 2015

Update

Hello crafty friends, I'm back for an update. Had to take hubby to the ER because his fever got to 104. Kinda' freaked me out!! But with all the testing they did and what was done earlier in the week, everything came back perfectly normal. No gall tones or badder trouble or anything. It's a double edge sword, because I didn't want anything to be wrong that needed surgery, but was kinda' hoping they found an infection somewhere that they could just treat with antibiotics to make these fevers go away so hubby could go down to Hopkins. But that isn't the case, they have decided that it is the tumors causing the pain he is having and the fevers, so they want to get started on treatments ASAP. I was prepared to beg this morning to get them to start a treatment this week, but I didn't have to, thank the good Lord for that. Treatments start tomorrow morning at 8:40 am. It will take 3 consecutive weeks to get his full treatment plan into effect because of the paper work and such as he will be wearing a pump for 48 hours after treatment again. I just pray that the treatment at a lower dose this time around works and the side effects stay low. This was hubby's first treatment when we started on this journey but at a higher dose, but the side effects got to back and doc had to take him off it. The side effects are: cold sensitivity-has to drink warmed water, can't touch anything cold or it gives extreme pain, thankfully it isn't winter this go around! He couldn't even breathe in cold air as it would cause his throat to close up on him or I should say gave the sensation of it. He feet and fingers went number, so it got so he was falling a lot and couldn't button buttons and that is when doc pulled him off. It was the only treatment that worked on the tumors though. It shrunk the largest tumor by over half and the smaller tumors disappeared. So now I need it to work again with minor side effects so he can stay on it. Once or if the tumors are knocked back then the fever will leave too. So I'm still asking for prayers that this time around the treatment will work and not give him the side effects of the neropathy (sp) because that is what will cause them to pull him off this treatment. This treatment plan was the doctor from Hopkins backup plan in case the study didn't work. I wish we could have tried the study first, but God had other plans. So we will go with His plan and then if it all works out and the fevers leave, hubby will be able to wait the 28 days after getting off treatment and go down to do the study. 

Then on top of all that going on this weekend, my mother passed away Saturday late afternoon and I have the viewing and funeral stuff this week too. So I'm a bit scatterbrained to say the least. I didn't have a relationship with my mother, she chose alcohol over her family and was very abusive, so I had to make the choice to walk away from all of that in my 30's. Tried to go back a few times hoping that things had changed but they hadn't. My step-father said that she was still drinking heavily when he found her slumped over, he thought at first she just passed out cause she did that all the time. I guess she would drink herself to were she would just pass out. So even though I didn't have a relationship with my mother, she was still my mother and I want to go to the views and funeral and to support my step-father. He was an abused husband as my mother was a ticking time bomb waiting to go off. But I hope she is at peace now and not having to fight all the demons she was fighting. Sad it turned out this way but it was her choice, not mine. She gave me no choice but to walk away. So please keep hubby and myself in your prayers.  I need prayers to keep my sanity through all this. Thank you for reading this long post and if you stuck with me this far, I'm happy. If you didn't I totally understand. And most of all thank you for all of your support and prayers, I really believe that your prayers is what is keeping hubby's "numbers" looking very good and healthy. Crafty hugs, Brenda 

Tuesday, April 28, 2015

Rudolph Day

Hello my crafty friends, I have just a little update before I show you my card. We went to see the family doctor again on Monday and he is running more blood tests on Lyme's, Pancreatis and the usual blood work and a abdomen/pelvic CAT scan. Saw our local oncologist today and he was more concerned this the fevers are higher than we first suspected. Our thermometer wasn't working right and we got a new one. Hubby's fever went up to 101.8 on Sunday evening, so doc didn't like that. He added on more blood work, port blood withdrawal and he added a chest CAT scan to the family doctors scan. Hubby has already did the blood work today and the CAT scan is for Thursday afternoon. So now it is just a matter of trying to "catch" whatever is causing the fevers with the blood work and scan. I know stuff going on in the blood work doesn't always show up right away. It took almost 2 years to get the "right" blood work to show up with my Lupus when they were trying to diagnose me. Doc talked to us about that and I told him I could relate, and when he found out that I had Lupus and RA, he said that I know exactly what he is talking about. Even now my doctor doesn't "catch" my Lupus acting up with blood work because the timing is usually off. So hopefully they will find something. If they can't after extensive testing,  doc said he will start hubby on the backup chemo plan and if it is his tumors causing the fever, and if the treatment works well like it did the first time, that could make the fevers go away. So we will see how it goes. I feel much better now that they are taking these fevers more serious! Last time hubby had a fever was when his tumor ruptured in the colon making him a lifetime chemo patient, but we didn't know he had a tumor. Family doc didn't take his fevers serious then either because his blood work was perfect. Well his blood work has been perfect this whole time all through chemo! So you can't go by just the blood work. Sorry, I said this was going to be quick and it wasn't. lol

Ok, I have been so tense, stressed and just plain in a funk so I had to go into my craft room for a while just to get away from all of this health stuff. It's weird because part of me wants to craft, but another part of me doesn't want too. But I forced myself to make a card for Rudolph Day. And low and behold I made two Christmas cards to go into my stash for this Christmas. But the one I'm entering into the Rudolph Day is the first one. Rudolph Day  always starts on the 25th of each month and runs to the end of that month. It's a great way to build your Christmas card stash, so I've been trying to play along each month, but I missed March's. Anyway I'm entering my card over at Rudolph Day. My card is a standard A2. I used some cork board material that Loll sent to me, bless her heart, she is just the sweetest! I also used SU's Wondrous Wreath and a sentiment from My Creative Time, as is my stitched layer. I embossed the sentiment in SU gold embossing powder along with the second layer of my wreath. I used my Misti to stamp the layers to my wreath, that worked out perfectly, I just didn't die cut it perfectly. lol But it wasn't to bad and I am please with how this card came out. I hope you like it too.


 Showing the gold shine. May stamp this bow and emboss in gold and then cut it out. I don't like that the bow loops don't have any "holes" in them. lol


My second card is just a simple little card too. I used My Creative Time Products on this one.


Thanks for stopping by to visit me, I always appreciate when you stop by. I love the love you guys always leave me, you are just the best!! Crafty hugs, Brenda

Sunday, April 26, 2015

No Hopkins for a 3rd Time

Its a no go to Hopkins for the third time. I was really praying that the third time was the charm. But it isn't to be. Hubby is still running a fever and it seems to be a little higher than it was. His port is not infected thank God and he has no infection in his blood. So where is this fever coming from? Well that's the million dollar question. The local oncologist said that it could take up to 3 weeks for a viral fever to go away. Well Saturday was 3 weeks, or close to it. Then he said that the cancer tumors could be causing the fever, though it rarely happens. So.....here we sit, hubby being miserable with a burning pain in his belly and me being nervous and just trying to make him comfortable. I'm at my wits end as we have been to the family doctor 3 times and all tests come back fine and we've been to the local oncologist with all test coming back fine. I'm ready to just take him to the emergency room of our local hospital, not sure that will make a difference but we need to find out what is going on. Now I just have to talk hubby into going. He has said if he is still in pain tomorrow he will go so I will be holding him to it! That's the update, will update again when we have something to go on. Thanks for holding us up in your prayers, it sure means the world to us as well as your support to me. Crafty hugs, Brenda

Wednesday, April 22, 2015

Blessings Fall Like Rain

Hello my crafty friends, I hope you are having a great week thus far! My project this week for Cardz TV Gallery is a quick and simple one. With hubby being sick, my time has been spent running him to the doctors and taking care of him. We have to get his fever gone before he can do the study at Johns Hopkins, it has been a busy one around here. So I apologize that my project is plain, but I think it is a good one. The Cardz TV stamps I used on this card are:



I used Suburbia for my lady with the umbrella, I can't remember what cartridge I got the grass from, the clouds are from Disney and Friends, and the flowers are from My Quiet Book. I used Glossy Accents for my rain drops. Papers are from my stash and I have no clue who they are by. And that's it, plain and simple just like I told you. lol Have a wonderful week, we are hoping to get results from the blood work and port blood work. Then maybe we can get a plan on getting rid of this infection that hubby seems to have going on.

Thanks for taking the time to visit me today. I always appreciate your visits and your comments! Crafty hugs, Brenda



Monday, April 20, 2015

A Bright Spot in Our Lives/Little Update

Hello my crafty friends, I hope you all are having a great start to the week. Hubby is still running a fever but I think we are getting on the right track at getting him well. Blood tests will be done today, along with blood drawn from his port to make sure there is no infection in there. Not sure if this fever is going to be gone by the 28th, but I am sure praying it is. If it isn't, then God must be telling us that now isn't the time for the study. I'm trying not to be down about it, but it will be disappointing if this fever is still around next week.

But we have a bright spot in our lives once again. Son #4 and his bride to be are expecting, so we will be grandparents again come Nov.!!! I'm so excited to be grandma once again. I would have preferred that they had been married first, but at least they are engaged and will be married in June. Now what are the odds that it will be another girl?! lol I always told my 6 boys that I had the boys so they will have the girls and so far that has been pretty true. We have 5 granddaughters and only 1 grandson. He is so out numbered! But these kids are the joy in our lives. So we can't wait to hold this little bundle of joy come Nov.! Couldn't wait to share with you all. Crafty hugs, Brenda

Thursday, April 16, 2015

No Go to Hopkins

Hello my friends, thank you for all your comments. Hubby got cancelled for Hopkins tomorrow. Back to the doctors we went today and doc put him on another antibiotic along with prednisone. Got back home waiting on RX's to be filled and we call our contact at Hopkins. She told us that if hubby takes the prednisone he won't be able to come in for 30 days! So put a call in to family doc and he says don't take the prednisone. So tomorrow is off and they have scheduled hubby in for the 28th. That will give him time to heal and then hopefully this will be the last cancellation!! They are really trying hard to get hubby in and going, but this has to be gone because if the CAT scan shows any infections he will be kicked out of the study. So I really appreciate them working so hard with us to get this done. So that is where we are at for now. Hubby just has to rest, take his meds and heal. Thanks for hanging in here with us everyone, we so appreciate you all!! Hugs, Brenda

Wednesday, April 15, 2015

New Update

Hello my crafty friends,  I hope your week is going well. Hubby has been home sick since last week. Of course last week he kept trying to go to work only ended up staying home at lunch time because his fever would make an appearance. I made him a doctors appointment last Wednesday and the soonest they had open was Friday. So off we went last Friday. As I suspected he had bronchitis. So we leave and go get his RX's. In the mean time Johns Hopkins called wanting hubby to go down to do his testing this past Tuesday, but when they found out he was sick and on antibiotics the person had to check to see if that was ok. So they didn't let us go down. Then on Tuesday, hubby didn't run a fever. We were happy about that hoping he was on the mend. He also finished his antibiotic yesterday as well. Johns Hopkins called again yesterday and wants hubby to be down there on Friday at 12:30 pm to do the testing. So they will do an EKG, a CAT scan, blood work and a full physical. We were so excited and still are...but....today hubby's fever came back! I was heartbroken to say the least. So I will be calling our family doctor first thing in the morning! We are both still excited to be going down this week to Johns Hopkins. I am just praying that the fever is because doc didn't give hubby a strong enough antibiotic and that it isn't because his "numbers" are going down. The man hasn't been sick since...well I can't remember since when! His numbers have to stay up if he is to qualify for this study and that is what has me worried. I sure pray that it is just that the antibiotic wasn't strong enough. Will give an update on how the testing goes when we know something. Thanks for taking the time to read this, thank you so much for your prayers and above all thanks for your support! Crafty hugs, Brenda
 

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